Just this week I have had a friend who's son has finally been given a diagnosis as well as related with friends/family who have known their diagnosis and also need to be given a diagnosis. No matter where you fall on this list, we all have one thing in common...a lot of emotions! According to Congress, There are many home truths about disability, but perhaps the most visible one is that “disability is a natural part of the human experience...”
I am taken back, just a bit, to when the twins received their official diagnosis. I remember how they were missing milestone after milestone and my life was measured out in months, as in, "they are 15 months" or "next Wednesday they will be 21 months" because each month was a race against the clock to check off some milestone, ANY milestone. But deep down, I knew a diagnosis was coming. And the truth of the matter is that they were the same PERSON the day before their official diagnosis as they were the day after. The only thing that changed was our ability to communicate their needs and receive certain services more easily.
One of my favorite comments is from Joni Erikson Tada when she says that perhaps those who are truly disabled are the ones who CAN jump up and run out the door each morning without any thought to needing Jesus Christ in their life. I can't even get out of bed without being very aware of my need for Him.
If you are dealing with a new diagnosis know that you are not alone. The NICHCY organization offers lots of well organized information for you. And I found the article on receiving a new diagnosis to ring true! This article HERE is also helpful in giving words to feelings. Joni and Friends also offers loads of resources which should help you from isolating yourself.
Remember, your child is still just that, first and foremost, YOUR child/ your CHILD.
Here is a portion from my journal when we received our diagnosis.
Now may the Lord of peace Himself continually grant you peace in every circumstance. The Lord be with you all.Publish Post2 Thessalonians 3:16